Disclaimer

Nothing in this blog should be taken as medical advice. It is only what we've learned from our experience and research.

Thursday, May 30, 2019

Stress Echo Test

Stress Echo Test

Levi had a stress echo test this week which verified that his heart is under performing and does not show any signs of improvement. So, they are getting him on the transplant list. They'll be performing a heart cath within the next couple of weeks along with implanting a defibrillator as they don't feel it is safe for him to continue without a defibrillator for much longer.  They've tweaked his medications some more, too. The heart cath will most likely give us a clearer idea of what the time frame is for transplant and probably determine whether or not they want to keep Levi in ICU while waiting for a heart.

American Heart Association

I've been unable to find any information about the AHA helping individual heart patients.  Does anyone have any information?

Friday, May 10, 2019

Prayers needed for Levi!


In November, Levi began struggling to breathe because of fluid around his lungs.  His doctors determined that his heart was failing due to rejection.  They took action to reverse the rejection and he felt much better and was able to visit family for the holidays.

So far in 2019 Levi has had a few hospital stays due to heart failure symptoms.  These symptoms are due to restricted blood flow to and from his heart.  The doctors have put him on new meds and adjusted others.  His heart is somewhat stabilized but still considered to be in failure. 

At this point he is doing okay and trying to do things as normally as possible since he's not technically on the list for another transplant yet. We should know more within the next couple months.

Please join us in praying for healing for his heart, wisdom for the doctors, and financial support.